Happy Friday, my loves! We made it through the week and are ready for some R&R!
This week, along with tons of other changes to the blog, I made a huge decision to be fully honest and open with my followers and share my battles, my victories, and my tips and tricks for dealing with Scoliosis and Spinal Fusion. This is such a complicated personal subject, that I wasn’t sure how I would share it all and reach the people who need it most. So, I decided that every Friday will now be “Fusion Friday”! Each Fusion Friday will have a helpful, inspirational post all about Scoliosis. I felt the need to reach out to adults, like me, battling with chronic pain from Scoliosis and Spinal Fusion.
Most online support groups are for young teens in back braces about to have their surgery, which is amazing because that is one of the hardest things they will have to go through in their lives. However, the journey never ends there. We all know that having a fusion will change your life for the better, but it also comes with many setbacks and challenges that aren’t discussed in media.
Chronic pain is a BITCH and because most people can’t see I have scoliosis, they assume I am lazy for being constantly tired and in pain. You have no idea how many times I have heard people tell me with a straight face, “haven’t you tried putting a hot pack on your back? That’s what works for me/my friend.” Sometimes I want to reply, “oh wow, the doctors never thought about that. Thanks, buddy!” But, I have to restrain myself from slapping the person because I know they don’t understand chronic pain… and that’s not their fault.
Since there is ignorance and judgement in the world, I feel obligated to keep up with appearances, chores, and physical work duties at the same pace as everyone else. This is NOT realistic for anyone who is struggling with chronic pain of any kind. That concept right there has taken me years to come to the realization. No one would expect someone with the Flu to be operating at 100% and keeping up physically with other healthy employees. So, be nice to yourself because Scoliosis is a hell of a lot worse than the Flu.
Of course, we want to put our best foot forward, but some days, it’s nearly impossible.
I also suffer from Depression and Anxiety, which usually comes with the territory of having chronic pain. Even though I have almost no energy to clean, I have to make it a priority because my mental health will suffer if I sit in a dirty apartment all day. I’m sure I am not alone in this pet-peeve.
Okay, so how on earth do you keep a clean house, blog on the regular, and deal with disabilities? It’s not easy unfortunately, but it is possible with careful planning.
Here’s how it works:
I set my timer for 15 minutes and walk around picking up trash and misplaces items. I tidy up the whole apartment as much as I can in that 15 minutes. This makes it like a fun race against myself and distracts me from the fact that I am doing chores or how many daunting tasks are ahead of me.
Another reason why I love working in 15 minute increments, is the fact that it is only 15 minutes! Most people can do anything uncomfortable for 15 minutes. If you can’t, that is totally okay! Everyone is at a different stage in their recovery. If you can only clean for 10 minutes or even 3 minutes, do that! Every little bit counts! You are doing YOUR best and should be proud of yourself for being strong. Take a moment to appreciate your brain and your body because it is YOURS!
After, the 15 minutes is over, I always take a break.
This is the biggest component of why this method works. I find that pain likes to sneak up on you now and later. Save yourself a complete meltdown by resting your body. Again, if someone had the Flu, they would not be expected to clean their house all day long. That person would come unglued.
Listen to your body and see how long you need to recover. On busy days, I like to clean for 15 minutes and rest for 45 minutes! That sounds like a lot, but during that break, there is the opportunity to finish up homework, blog posts, or reading! For me, this is productivity at it’s finest! Your body gets to take a break while your mind works and then your brain gets to take a break while your body works! Makes sense?
Living with chronic pain is all about balancing life in bite size pieces and not pushing yourself too hard.
I hope this helped! Comment down below if this works for you or what you do differently! Can’t wait to hear ❤